Volunteers

Sari Edber - LA MISS Coordinator and Co-Facilitator

sari.edber@missfoundation.org


Sari Edber is the proud mother of three children. Her first son, Jacob, was stillborn full term in 2006 after a perfectly healthy pregnancy. While Sari and her husband, Daniel, were learning to navigate the horrific path of being bereaved parents, the MISS Foundation immediately became a lifeline for them through their online resources, monthly support groups, and the lifelong friendships that they made. They found comfort, healing, validation, guidance, and amazing mentors, who would walk this journey alongside them.  Sari continued her involvement with MISS when she was one of three stillbirth mothers who sponsored and helped to pass new California legislation for stillborn babies. After almost a year of lobbying, our bill, that allows parents to request a government issued Certificate of Still Birth, was signed into law in October, 2007. 

Sari has been the lead coordinator of our LA MISS support group since 2008 and continues to facilitate our monthly support groups, along with some of our other co-facilitators.  She serves as the co-chair of the international MISS Parental Advisory Board and has completed the Compassionate Bereavement Care certification program to become a certified peer grief counselor.

Sari's advocacy work has extended into the greater Los Angeles community, as well, by working closely with other grief organizations, leading training sessions with hospitals, and providing bereavement care workshops for health/emotional care professionals with the goals of: sharing her experience, being a peer resource for other bereaved parents, and increasing public awareness, education, and research about child death.

Sari and Daniel's healing revolves around finding ways to keep Jacob’s memory alive and their comfort comes from knowing that Jacob is forever a part of their family, especially in the lives of their two subsequent children. 


Danielle Roderick - LA MISS Parent Liason and Co-Facilitator

danielle.roderick@missfoundation.org


Danielle Roderick came to MISS after the death of her son, Caleb, in 2017. Group was one of the first places where she could talk about the complexities of her grief and not just be met with empathy, but also understanding. It took Danielle a year to get to group, afraid that it wouldn't be the right fit, or that it would just be too hard, but group has been a mainstay in her journey with her grief. As a volunteer, she wants all families to have as much support as possible. It's so easy to be isolated as a bereaved parent, and volunteering with MISS has been one way to help other families feel less alone.  


Genevieve Santillanes - LA MISS Treasurer and Co-Facilitator

genevieve.santillanes@missfoundation.org

Genevieve Santillanes is the mother of four children. She made her way to MISS in 2014 about 6 months after the death of her first child, Theo. The community and connections Genevieve and her husband found through MISS helped them immensely in their grief journey. The support and mentorship Genevieve received from facilitators and other bereaved parents were invaluable in navigating subsequent challenging pregnancies. Genevieve has continued as a MISS volunteer because she wants other bereaved parents to also find the community and support she needed after the death of her son.


Agata Labianca - LA MISS Facebook Liason

agata.labianca@missfoundation.org

Agata became a part of the MISS Community about a month after her son, Rio Labianco, was born full term on April 8, 2016. The majority of Rio's life was spent in the NICU where doctors tried to figure out his ailments and how he could best survive. Unfortunately, the prognosis for him was so painful that his parents, Agata and Kevin, chose to remove life support. They were holding him outside in the sunshine when Rio passed away on April 20, 2016. 

Agata has attended numerous meetings and is active on the LA MISS Facebook group. She was honored to read at the 2016 December Candlelighting and is thankful for the opportunity to give back to the community.  MISS has provided several close friendships and is a place of constant support through the child loss journey. No parent wants to be a part of this group but it is an amazing resource for those of us who need compassion above all else. Agata aims to remember Rio through her service in this space.